Fear of Regrets

I will have peace knowing I’ve done everything as his mom.

"Avery wouldn't be here if it weren't for me." The mom of a son with Mito talks frankly about how all the decisions she's made for him have given him the best life he could have given his condition and tha he will leave when it is time. There won't be any guilt when he dies. Just pure sadness.

Parents worry they’re going to have regrets, but if it’s the right decision …

Psychologist and grief counselor Nancy Frumer Styron talks about how parents caring for children with life-limiting illness worry they are going to have regrets but if they can say they've done the best they could in the situation, it will help them later. Two parents confirm this, including a mom who ultimately decided to stop her son's cancer treatment.

Educating parents about the Pros and Cons of the decisions can help with their regrets

A pediatric palliative care social worker notes that it is natural for parents to fear they will have regrets about decisions they make for their child, and that there are strategies they can use to minimize regret, including asking questions, bringing in others to help them listen, and considering everything in time before making a decision.

Not once did we think we’d have any regrets.

Parents of a little boy with SMA knew what they wanted and never looked back. "We weren't going to take away his ability to eat or his ability to talk."

I will have peace knowing I’ve done everything as his mom.

Parents worry they’re going to have regrets, but if it’s the right decision …

Educating parents about the Pros and Cons of the decisions can help with their regrets

Not once did we think we’d have any regrets.