CPN | There is no planning. You’re just there, life on hold. (Or Everything is put on hold until his life ends.)
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There is no planning. You’re just there, life on hold. (Or Everything is put on hold until his life ends.)

Parents of a medically complex son with multiple progressive disorders, who is now age 18, talk about the challenge of not knowing how it’s going to go, how long it’s going to last, and the frustration of not being able to plan. Everything is put on hold until his life ends.