CPN | I was scared of losing him. I was scared of him not have a quality of life.

I was scared of losing him. I was scared of him not have a quality of life.

The mother of a 12-year old boy with SMA Type 1 talks about mourning the loss of her dreams for her son, while also celebrating the happy milestones he has reached that she could not have hoped for — he graduated 6th grade!