Nicky
Nicky, mother of Janessa (age), Isaiah (13) and Avery (9). Isaiah and Avery have mitochondrial disease.
I try to prepare but there’s just not going to be any preparation.
How do I deal with fact that I know I’m going to bury Avery? I am matter-of-fact with others, but then the thought pops into my head when I’m in my car and I am overwhelmed. Will I be able to get out of bed? I realize I can’t protect my heart. I try not to delve in and let it run my life.
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I try to prepare but there’s just not going to be any preparation.
Spinal Fusion Surgery: The most difficult decision I've have to make
It was like this little secret society.
Palliative Care Focuses on All the Living
