LJ and Catherine
Parents of Rachel, who has leukodystrophy, age 22-months, and siblings Alex, Caitlyn, Joshua, Abigail, Simeon, and Michael
Rare disease in children: Voices of the Siblings
Three groups of siblings speak poignantly about what it is like to be the brother or sister of a child living with a rare, life-limiting disease. Produced for the DISORDER film festival.
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Rare disease in children: Voices of the Siblings
Helping Siblings Cope, From the Parents
I’m like, I don’t need a bucket list right now.
MD: Parents--Don’t underestimate the importance of your own goals and values
