I couldn't imagine how much pain Sarah was in. I could only go along with it.
A grandmother of a little girl who died from Gaucher Type 2 acknowledges that she could never fully know her daughter's pain. Her daughter, the little girl's mother, talks about how her mother's strength helped her get through. "We felt taken care of."
My concern was for them as a couple.
The grandmother of a little girl with Gaucher Type 2 talks about how her biggest concern was for her daughter and her daughter's husband to stay together and be OK as a couple. She also shares how unnatural it was to say, "My daughter's daughter is dying," and not be able to do anything but support her daughter.
I did the little things that I could do, like watch Emerson so they could have a date.
A grandmother of a little girl with Gaucher Type 2 shares the ways she found to be helpful without being too involved (aka bossy!) or being able to actually fix the disease. The mother talks about how helpful her mother was with her daughter. "She had a real connection with you."
I would keep it together until I talked to Mom. Then I'd fall apart.
The mother of a little girl with Gaucher Type 2 talks about how she would only fall apart when she talked to her mother -- where she could be most vulnerable. "You were always the first person I wanted to talk to but the person I couldn't talk to if I needed to keep it together"