6/26/2023 The Endurance We Didn't ChooseBefore Lucas was born, before he was diagnosed with two rare diseases, and before he…
Why Every Parent Should Read A Heart That WorksStorytelling is survival. I have had this thought many times over in my years as…
Find Your Truths to Hold OntoI remember my blood type by recalling my college grading average: B+. The level of…
A Safe Haven and a Launching PadBeing a parent often means navigating the swings of a child’s shifting needs. No matter…
Finding HOME in the NICU and the Heart Our son Sage was born healthy, or so we believed. There were no pre-determined problems…
Making Informed Decisions about Our Daughter's End of Life Throughout our daughter’s short six and half years with us, my husband and I had…