7/28/2017 What anguish looks like: when parents realize they aren't in control. But neither is anyone else.I have been following the Charlie Gard case in England – the infant whose rare…
Your Voice - Family Advisory CouncilIf you are spending a lot of time in hospitals, you might want to consider…
A Shared Space, A Shared Endeavor Today, I presented Courageous Parents Network at Compassionate Care Rounds at Massachusetts General Hospital…
The Body and Soul of Care for Our ChildrenWhen I was caring for my daughter Cameron during the progression of her life-limiting disease,…
E pluribus unum, one out of many - advocating for all. Powered by my child to Advocate for Families Now: My testimony in support of S1138…
Providers focus on the child and family experience. In March, I attended a workshop hosted by the National Cancer Policy…
Pediatric Palliative Care is a Social Issue Courageous Parents Network hosted Dr. Joanne Wolfe, MD, MPH—Director of Pediatric Palliative Care…
Pediatric Palliative Care in The Wall Street JournalPart of the mission of Courageous Parents Network is to spread awareness and education about…
Taking Action Here at Courageous Parents Network, we are passionate about pediatric palliative care and…
