of Courageous Parents Network is to support parents and families of children living with life-limiting illness with the tools they need as they begin to contemplate their child’s transition to end-of-life. We will do this through:
• Providing parents with coping resources around Anticipatory Grief
• Providing parents with a framework within which to think about the tough questions, including end-of-life
• Advocating for pediatric palliative care
• Educating professionals around the needs and experiences of parents caring for these children
is that parents who receive a devastating diagnosis for their child will have the support necessary to care for them with courage and confidence, and that the narrative of their family’s journey enables healing before and after the child’s death. The better the Before, the better the After.
At the heart of Courageous Parents Network are the parents themselves: parents sharing—through video and audio—their experiences and feelings, speaking frankly about intimate challenges and moments in caring for their child who is sick including through the end-of-life.
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